Project Tycho includes data from all weekly notifiable disease reports for the United States and elsewhere dating back to 1888. It includes data counts for 58 diseases and 92 conditions; the availability of data varies by condition and location. Data are available as pre-compiled datasets, through a data query system, and through an API. Pre-compiled datasets include 92 datasets on specific diseases...

The WTC Health Registry is an ongoing epidemiological cohort study created as a public health response to 9/11. The Registry includes multiple waves of surveys that are conducted approximately every 3 years. A fourth follow-up survey (Wave 5) was completed between 2020 and 2021. Data is available for: Wave 1 Adult Survey (2003-2004) Wave 2 Adult Survey (2006-2008) Wave 3 Adult Survey (2011-2012)...

The Surveillance, Epidemiology, and End Results (SEER) Program at the National Cancer Institute (NCI) is the authoritative source of information on cancer incidence and survival in the United States. SEER collects data on cancer incidence and population data associated by age, sex, race, year of diagnosis, and geographic area from registries across the country, covering approximately 48% of the national...

The Type 1 Diabetes (T1D) Exchange Clinic Registry collects information on individuals with type 1 diabetes from participating institutions in the United States in order to help researchers characterize individuals living with the disease, conduct exploratory or hypothesis-generating analyses, and identify potential participants for future clinical studies. The registry includes over 26,000 individuals...

This data contains information on patients with neurofibromatosis type 1 and neurofibromatosis type 2 and schwannomatosis. The neurofibromatoses (NF) are rare disorders with variation in clinical manifestations, and the NF Registry was created to assist researchers in studying the disease. Patients are included in the registry if they meet the diagnostic criteria for one of the three NF conditions....

The Neustar Localeze Business Registry contains data on millions of businesses located in the United States. For each business location, the registry contains information on the business’s address, name, phone number, type of business, hours of operation, brands sold, payment types accepted, chain information, number of employees, amount of annual sales, and number of years in business. Access to the...

The Scientific Registry of Transplant Recipients (SRTR) database includes data collected by the Organ Procurement and Transplantation Network (OPTN), supplemented with data from the Centers for Medicare & Medicaid Services (CMS) and the National Technical Information Services (NTIS) Death Master File. The database allows organ transplant programs to register candidates for transplant, match donated...

This dataset from the North American SUDEP Registry represents an ongoing collaborative effort to collect clinical information, tissue, and DNA to support research on clinical research factors for Sudden Unexpected Death in Epilepsy (SUDEP) and other causes of epilepsy-related deaths. For enrollment in the registry, at least one of the following criteria was satisfied: SUDEP within the last five...

The Program for Medical Education Innovations and Research (PrMEIR) has created a registry of potentially accessible routinely-collected educational data (e.g., exams, clinical assessments, needs assessments, performance ratings) to support NYU School of Medicine's evidence-based medical education and training programs. Registry data includes all those learners in NYU’s School of Medicine who have...

The Program for Medical Education Innovations and Research (PrMEIR) has created a registry of potentially accessible routinely-collected educational data (e.g., exams, clinical assessments, needs assessments, performance ratings) to support NYU School of Medicine's evidence-based medical education and training programs. Registry data includes all those learners in NYU’s School of Medicine who have...