Description: The Scientific Registry of Transplant Recipients (SRTR) database includes data collected by the Organ Procurement and Transplantation Network (OPTN), supplemented with data from the Centers for Medicare & Medicaid Services (CMS) and the National Technical Information Services (NTIS) Death Master File. The database allows organ transplant programs to register candidates for transplant, match donated organs to waiting candidates, and submit data to donors, candidates, and recipients before and after transplant. The database includes information on the donor/recipient matching process, deceased donors, living donors, and transplant recipients from 1987 to the present.
Publisher: The Chronic Disease Research Group (CDRG) of the Hennepin Healthcare Research Institute
Timeframe: 1987 - Present
Geographic Coverage: United States

Subject of Study

Subject Domain

Anatomy

Health Care System

Health Status

Quality of Health Care

Surgery

Keywords

Anatomy

Death

Delivery of Health Care

Health Status

Living Donors

Organ Transplantation

Outcome Assessment (Health Care)

Quality of Health Care

Registries

Surgery

Tissue and Organ Procurement

Transplant Recipients

Transplantation

Treatment Outcome

Access

Restrictions

Fee Required

Application Required

Instructions

The SRTR accepts three types of data requests:

Simple requests for aggregated data that do not require additional programming or analysis and do not require a Data Use Agreement (DUA);
Requests for patient-level data (Standard Analysis Files (SAFs) or Enhanced Standard Analytic Files), which require a DUA;
Data requests for linkages to an external data source—a DUA, Institutional Review Board (IRB) approval, and Health Resources and Services Administration (HRSA) approval are required;

Cost associated with each data request depends on the amount of personnel time required to fulfill the request. SAF cost $1000 and each updated SAF under an existing DUA costs an additional $500. For linkage requests or information outside of SAF, SRTR will provide an estimated work-effort cost. Work is charged at $125 per hour (in addition to the cost of the SAF). Discounts are available for current students (including medical doctors in residency or fellowship programs) who are using SRTR data to fulfill degree requirements.

Access via SRTR

Data Request Instructions

Associated Publications

Leppke S, Leighton T, Zaun D, Chen SC, Skeans M, Israni AK, Snyder JJ, Kasiske BL. Scientific Registry of Transplant Recipients: collecting, analyzing, and reporting data on transplantation in the United States. Transplant Rev (Orlando). 2013 Apr;27(2):50-6.

Massie AB, Werbel WA, Avery RK, Po-Yu Chiang T, Snyder JJ, Segev DL. Quantifying excess deaths among solid organ transplant recipients in the COVID-19 era. Am J Transplant. 2022 Mar 16:10.1111/ajt.17036.

Data Type

Study Type

Observational

PubMed Search: View articles which use this dataset

NYU Data Catalog

Scientific Registry of Transplant Recipients

Access