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World Trade Center (WTC) Health Registry
- Description
The WTC Health Registry is an ongoing epidemiological cohort study created as a public health response to 9/11. The Registry includes multiple waves of surveys that are conducted approximately every 3 years. A fourth follow-up survey (Wave 5) was completed between 2020 and 2021. Data is available for: Wave 1 Adult Survey (2003-2004) Wave 2 Adult Survey (2006-2008) Wave 3 Adult Survey (2011-2012)...
- Subject
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Chronic DiseaseHealth StatusPopulation CharacteristicsRisk Factors
- Access Rights
- Free to All
- Local Expert
- Anna NolanMitchell Cohen
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T1D Exchange Clinic Registry
- Alternate Title(s)
- Type 1 Diabetes Exchange Registry
- Description
The Type 1 Diabetes (T1D) Exchange Clinic Registry collects information on individuals with type 1 diabetes from participating institutions in the United States in order to help researchers characterize individuals living with the disease, conduct exploratory or hypothesis-generating analyses, and identify potential participants for future clinical studies. The registry includes over 26,000 individuals...
- Subject
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Chronic DiseaseHealth StatusPopulation Characteristics
- Access Rights
- Free to AllApplication Required
- Local Expert
- Jeniece IlkowitzMargaret McCarthy
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Neurofibroma (NF) Registry
- Alternate Title(s)
- NF Registry
- Description
This data contains information on patients with neurofibromatosis type 1 and neurofibromatosis type 2 and schwannomatosis. The neurofibromatoses (NF) are rare disorders with variation in clinical manifestations, and the NF Registry was created to assist researchers in studying the disease. Patients are included in the registry if they meet the diagnostic criteria for one of the three NF conditions....
- Subject
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CancerChronic DiseaseHealth StatusNeuroscienceRisk Factors
- Access Rights
- Application Required
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Scientific Registry of Transplant Recipients
- Description
The Scientific Registry of Transplant Recipients (SRTR) database includes data collected by the Organ Procurement and Transplantation Network (OPTN), supplemented with data from the Centers for Medicare & Medicaid Services (CMS) and the National Technical Information Services (NTIS) Death Master File. The database allows organ transplant programs to register candidates for transplant, match donated...
- Subject
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AnatomyHealth Care SystemHealth StatusQuality of Health CareSurgery
- Access Rights
- Fee RequiredApplication Required
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NYU Dataset
Database for Research on Academic Medicine (DREAM): NYU School of Medicine Resident Registry
- Authors
- Sondra R. ZabarColleen GillespieLisa Altshuler
- Description
The Program for Medical Education Innovations and Research (PrMEIR) has created a registry of potentially accessible routinely-collected educational data (e.g., exams, clinical assessments, needs assessments, performance ratings) to support NYU School of Medicine's evidence-based medical education and training programs. Registry data includes all those learners in NYU’s School of Medicine who have...
- Subject
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Medical Education
- Access Rights
- Application RequiredAuthor Approval RequiredAll NYU
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NYU Dataset
Database for Research on Academic Medicine (DREAM): NYU School of Medicine Undergraduate Registry
- Alternate Title(s)
- PrMEIR Medical Student Registry
- Authors
- Sondra R. ZabarColleen GillespieLisa Altshuler
- Description
The Program for Medical Education Innovations and Research (PrMEIR) has created a registry of potentially accessible routinely-collected educational data (e.g., exams, clinical assessments, needs assessments, performance ratings) to support NYU School of Medicine's evidence-based medical education and training programs. Registry data includes all those learners in NYU’s School of Medicine who have...
- Subject
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Medical Education
- Access Rights
- Application RequiredAuthor Approval RequiredAll NYU
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NYU Dataset
Melanoma Clinicopathological-Biospecimen Database and Repository
- Authors
- Iman Osman
- Description
Since 2002, the Interdisciplinary Melanoma Cooperative Group (IMCG) at Perlmutter Cancer Center has maintained one of the largest clinicopathologic resources, the Melanoma Clinicopathological-Biospecimen Database and Repository, for research on patients 18 years old and over with melanoma or at high risk for melanoma. Clinical data is stored in a secure REDCap database which contains 653 fields to...
- Subject
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CancerChronic DiseaseGenomicsRisk Factors
- Access Rights
- Application RequiredAuthor Approval Required
