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Jackson Heart Study
- Alternate Title(s)
- JHS
- Description
The Jackson Heart Study (JHS) is a population-based longitudinal study based in Jackson, Mississippi that investigates risk factors for cardiovascular disease among African Americans. It is a collaborative research project by the University of Mississippi Medical Center, Jackson State University, and Tougaloo College. The primary objective is to investigate environmental and genetic factors associated...
- Subject
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Chronic DiseasePopulation CharacteristicsRisk Factors
- Access Rights
- Free to AllApplication Required
- Local Expert
- Tanya M. Spruill
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INSIGHT Clinical Research Network
- Alternate Title(s)
- Formerly 'NYC-CDRN', Formerly 'New York City Clinical Data Research Network'
- Description
INSIGHT Clinical Research Network is a project founded by the Patient Centered Outcomes Research Institute (PCORI) and is part of the PCORnet program. The INSIGHT longitudinal datasets bring together New York City organizations including medical schools, medical centers, research support organizations, and practice-based research networks. Over 160 million patient encounters and 365 million diagnoses...
- Subject
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Chronic DiseaseCOVID-19Health Care SystemHealth StatusPopulation CharacteristicsQuality of Health CareRisk Factors
- Access Rights
- Fee RequiredApplication Required
- Local Expert
- Claudia Pulgarin
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National COVID Cohort Collaborative Data Enclave
- Alternate Title(s)
- N3C Data Enclave
- Description
The National Center for Advancing Translational Sciences (NCATS) has systematically compiled clinical, laboratory and diagnostic data from electronic health records to support COVID-19 research efforts via the National COVID Cohort Collaborative (N3C) Data Enclave. As of August 2, 2022, the repository contains information from over 15 million patients (including 5.8 million COVID-19 positive patients)...
- Subject
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COVID-19Electronic Health RecordsHealth Care SystemHealth StatusInfectious DiseasePopulation CharacteristicsRisk Factors
- Access Rights
- Free to AllApplication Required
- Local Expert
- Silvia Curado
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All of Us Research Hub
- Description
With an emphasis on reaching historically underrepresented populations, the All of Us Research Program recruits adults aged 18 and above across the United States to share their health data to enable new insights into human health and research on precision medicine. Participants contribute electronic health records (EHR), survey responses, biospecimens, wearable devices (biometrics), and physical measurements....
- Subject
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COVID-19Electronic Health RecordsGenomicsHealth Care SystemHealth StatusMental HealthPopulation CharacteristicsRisk Factors
- Access Rights
- Application RequiredAll NYU
- Local Expert
- Fred LaPolla
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Child Health and Development Studies: Generation 1
- Alternate Title(s)
- CHDS
- Description
The Child Health and Development Studies (CHDS) were launched in 1959 as prospective longitudinal cohort studies on pregnancy, delivery, and child development from birth through adolescence. Between 1959 and 1967, 15,000 families with expectant mothers who were members of the Kaiser Foundation Health Plan in Oakland, California consented to enrollment. Health and lifestyle data on mothers, fathers,...
- Subject
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Health StatusPopulation CharacteristicsPregnancy
- Access Rights
- Application Required
- Local Expert
- Linda G. Kahn
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Global.health COVID-19 Line Listing
- Description
Through January 6, 2022, Global.health maintained an anonymized individual-level (line) dataset on COVID-19 cases. A list of all contributing institutions may be found here. The dataset collected the following information where reported/available: Demographics (e.g., sex, age range, gender, occupation, nationality, ethnicity) Geographic details Symptoms Event history (e.g., first consult...
- Subject
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COVID-19Health Care SystemInfectious DiseaseRisk Factors
- Access Rights
- Free to All
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NYU Dataset
Data from Mucosal Immune Profiling in Patients with Inflammatory Bowel Disease
- Authors
- David P. HudesmanShannon ChangJordan E. Axelrad
- Description
This study dataset contains data from 28 adult and pediatric patients who were recruited from NYU Langone's Inflammatory Bowel Disease (IBD) Center. Study inclusion and exclusion criteria are noted below. Inclusion criteria: Subjects must have a suspected diagnosis of ulcerative colitis or Crohn’s disease Controls must have no clinical suspicion of ulcerative colitis or Crohn’s disease Signed and...
- Subject
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Chronic DiseaseHealth StatusPopulation CharacteristicsRisk Factors
- Access Rights
- Application RequiredAuthor Approval Required
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NYU Dataset
Trauma Risk Score Matching for Observational Studies in Orthopedic Trauma
- Authors
- Rown ParolaAbhishek GantaKenneth A. EgolSanjit R. Konda
- Description
Clinical data was extracted from electronic health records from patients treated for hip fractures by the Department of Orthopedic Surgery at NYU Langone Health between October 2014 and February 2020. A total of 1,590 patients aged 55 and older were included in the retrospective review with complete records for patient's sex; body mass index; comorbidities as measured with the Charlson Comorbidity...
- Subject
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AnatomyQuality of Health CareRisk FactorsSurgery
- Access Rights
- Free to All
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NYU Dataset
Outcomes of Breast Cancer Patients Treated with Chemotherapy, Biologic Therapy, Endocrine Therapy, or Active Surveillance During the COVID-19 Pandemic
- Authors
- Douglas K. MarksNibash BudhathokiJohn KucharczykFaisal Fa'ak20 more author(s)...
- Description
Data was abstracted from NYU Langone Health electronic health records, the Perlmutter Cancer Center Data Hub, and the NYU Langone Health SARS-CoV-2 Data Mart for all patients treated for breast cancer at Perlmutter Cancer Center either through telemedicine or in-person between February 1, 2020 and May 1, 2020 to determine the incidence of SARS-CoV-2 infection associated with treatment with cytotoxic...
- Timeframe
- 2020
- Access Rights
- Application RequiredAuthor Approval Required
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NYU Dataset
NYUTron: Health System Scale Language Models Are All-purpose Prediction Engines
- Authors
- Lavender Yao JiangXujin Chris LiuNima Pour NejatianMustafa Nasir-Moin24 more author(s)...
- Description
NYUTron is a large language model-based system that was developed with the objective of integrating clinical workflows centered around structured and unstructured notes and placing electronic orders in real time. The development team queried electronic health records from all NYU Langone facilities to generate two types of datasets: pre-training datasets ("NYU Notes", "NYU Notes–Manhattan", "NYU Notes–Brooklyn")...
- Subject
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Electronic Health Records
- Access Rights
- Free to All