The Jackson Heart Study (JHS) is a population-based longitudinal study based in Jackson, Mississippi that investigates risk factors for cardiovascular disease among African Americans. It is a collaborative research project by the University of Mississippi Medical Center, Jackson State University, and Tougaloo College. The primary objective is to investigate environmental and genetic factors associated...

INSIGHT Clinical Research Network is a project founded by the Patient Centered Outcomes Research Institute (PCORI) and is part of the PCORnet program. The INSIGHT longitudinal datasets bring together New York City organizations including medical schools, medical centers, research support organizations, and practice-based research networks. Over 160 million patient encounters and 365 million diagnoses...

The National Center for Advancing Translational Sciences (NCATS) has systematically compiled clinical, laboratory and diagnostic data from electronic health records to support COVID-19 research efforts via the National COVID Cohort Collaborative (N3C) Data Enclave. As of August 2, 2022, the repository contains information from over 15 million patients (including 5.8 million COVID-19 positive patients)...

With an emphasis on reaching historically underrepresented populations, the All of Us Research Program recruits adults aged 18 and above across the United States to share their health data to enable new insights into human health and research on precision medicine. Participants contribute electronic health records (EHR), survey responses, biospecimens, wearable devices (biometrics), and physical measurements....

The Child Health and Development Studies (CHDS) were launched in 1959 as prospective longitudinal cohort studies on pregnancy, delivery, and child development from birth through adolescence. Between 1959 and 1967, 15,000 families with expectant mothers who were members of the Kaiser Foundation Health Plan in Oakland, California consented to enrollment. Health and lifestyle data on mothers, fathers,...

This study dataset contains data from 28 adult and pediatric patients who were recruited from NYU Langone's Inflammatory Bowel Disease (IBD) Center. Study inclusion and exclusion criteria are noted below. Inclusion criteria: Subjects must have a suspected diagnosis of ulcerative colitis or Crohn’s disease Controls must have no clinical suspicion of ulcerative colitis or Crohn’s disease Signed and...

Through January 6, 2022, Global.health maintained an anonymized individual-level (line) dataset on COVID-19 cases. A list of all contributing institutions may be found here. The dataset collected the following information where reported/available: Demographics (e.g., sex, age range, gender, occupation, nationality, ethnicity) Geographic details Symptoms Event history (e.g., first consult...

Clinical data was extracted from electronic health records from patients treated for hip fractures by the Department of Orthopedic Surgery at NYU Langone Health between October 2014 and February 2020. A total of 1,590 patients aged 55 and older were included in the retrospective review with complete records for patient's sex; body mass index; comorbidities as measured with the Charlson Comorbidity...

Data was abstracted from NYU Langone Health electronic health records, the Perlmutter Cancer Center Data Hub, and the NYU Langone Health SARS-CoV-2 Data Mart for all patients treated for breast cancer at Perlmutter Cancer Center either through telemedicine or in-person between February 1, 2020 and May 1, 2020 to determine the incidence of SARS-CoV-2 infection associated with treatment with cytotoxic...

NYUTron is a large language model-based system that was developed with the objective of integrating clinical workflows centered around structured and unstructured notes and placing electronic orders in real time. The development team queried electronic health records from all NYU Langone facilities to generate two types of datasets: pre-training datasets ("NYU Notes", "NYU Notes–Manhattan", "NYU Notes–Brooklyn")...