NYU Dataset

NYU Alzheimer’s Disease Research Center Data and Resources

Alternate Titles(s): NYU ADRC
UID: 10380
Author(s): Thomas Wisniewski*
* Corresponding Author

The NYU Alzheimer’s Disease Research Center (NYU ADRC) maintains a large database of standardized clinical and neuropathological research data collected at NYU Langone Health for local investigators, as well as those at affiliated or collaborating institutions. The NYU ADRC database includes a cumulative record of over 1,500 subjects enrolled since 1972. Data was collected every two years until 2005 and then changed to annual collections. The data includes standardized clinical evaluations collected in accordance with National Alzheimer's Coordinating Center (NACC) Uniform Data Set (UDS) methodology.

Resources that may be requested include:

  • Biochemical/genetic
  • Bio-specimens (brain tissue, blood, cerebrospinal fluid)
  • Caregiver interview notes
  • Clinical/observational
  • Demographic information
  • Laboratory
  • Neuroimaging
  • Neurological
  • Neuropathological
  • Neuropsychological
  • Psychosocial data
  • Participants/subjects

The ADRC frequency reports generator in Tableau includes an inventory of current resources and the ADRC Resource Utilization Request/Agreement Form contains lists of instruments and scales utilized to evaluate participants.
1972 - Present
Subject of Study
Subject Domain


Application Required
To apply for access, please review the instructions on the NYU Alzheimer’s Disease Research Center’s website and then complete the request form. Interested researchers will be asked to provide:
  • Contact information (name, institution, phone number, email, and contact person)
  • Project information (project title, Institutional Review Board approval number, IRB approval date, principal investigator, and co-investigators)
  • Description of the study protocol (specific aims, background and significance, methods or procedure, and analyses of results)
  • A list of requested resources, including as subject lists, data variables, number of subjects and their characteristics, tissue sample types, etc. These details must be precisely specified either in the study protocol or in a separate cover letter.

For studies involving human subjects that require IRB approval, resources may not be allocated until the Alzheimer’s Disease Research Center receives a copy of the IRB approval. Requests are accepted on a rolling basis and evaluated in the context of resource availability, scientific quality and feasibility of the proposed study, and the potential for duplication or conflicts with previous or current studies.

Access via NYU ADRC

Resource Utilization Request/Agreement Form

Data Type
Study Type
Data Collection Instruments
Clinical Global Impression Scale
Unified Parkinson's Disease Rating Scale (UPDRS)-III Examination
Wechsler Adult Intelligence Scale-III (WAIS-III)
Boston Naming Test (BNT)
Hachinski Ischaemia Score
Memory Assessment Clinic - Q (MAC-Q)
Brief Cognitive Rating Scale (BCRS)
Global Deterioration Scale (GDS)
Blessed Dementia Scale
Mini Mental Scale (MMSE)
Hamilton Depression Rating Scale (HAM-D)
Behavioral Pathology in Alzheimer’s Disease (Behave-AD)
Lawton Instrumental Activities of Daily Living Scale (IADL)
GUILD Memory Test
Misplaced Objects Test
Digit Symbol Subsitution Test
Wechsler Memory Scale
Epworth Sleepiness Scale
Geriatric Depression Scale (GDS)
Functional Activities Questionnaire
Montreal Cognitive Assessment (MoCA)
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