The United States Renal Data System (USRDS) is a national data system that collects, analyzes, and distributes information about end-stage renal disease (ESRD) in the United States. The USRDS is funded directly by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). USRDS staff collaborates with members of Centers for Medicare & Medicaid Services (CMS), the United Network for...

ACCORD was a large clinical trial examining methods of lowering the rate of cardiovascular disease in adults with type two diabetes. The study was composed of three clinical trials: an intensive lowering of blood sugar levels, intensive lowering of blood pressure, and treatment of multiple blood lipids with a combination of a fibrate and a statin. The study enrolled 10,251 adults beginning in 2001.

An NHLBI-funded observational study of risk factors for cardiovascular disease in adults 65 years or older. Starting in 1989, and continuing through 1999, participants underwent annual extensive clinical examinations. Measurements included traditional risk factors such as blood pressure and lipids as well as measures of subclinical disease, including echocardiography of the heart, carotid ultrasound,...

Project AsPIRE (Asian American Partnership in Research and Endowment) was a community-based participatory research program designed to develop, test, and evaluate a community health worker model designed to reduce cardiovascular disease and hypertension disparities among Filipino Americans living in New York and New Jersey. The project consisted of a pilot intervention and a 4-month full intervention....

This dataset was compiled as part of a study to assess sagittal spino-pelvic alignment and compensatory mechanisms, using 3D stereographic reconstructions (EOS 3D) and full body x-rays (EOS 2D) in the setting of adult spinal pathologies. Correlations with patient reported outcomes and health-related quality of life were measured and evaluated using Patient-Reported Outcomes Measurement Information...

This dataset was derived from three prospective and active (as of 2017) longitudinal studies of aging subjects with normal cognition. Data was collected at NYU and through the Alzheimer's Disease Neuroimaging Initiative (ADNI) and National Alzheimer's Coordinating Center (NACC), although data from ADNI and NACC was anonymized prior to reception at NYU. The NYU dataset includes 331 subjects while the...

This dataset was generated during a voxel-based morphometry (VBM) study of amyotrophic lateral sclerosis (ALS) and patterns of brain atrophy within ALS subtypes. 62 sporadic ALS patients with limb (n = 42) or bulbar (n = 14) onset with MRI data were included in the study. Onset symptons were collected by medical staff through interviews with patients and family members. The ALS Functional Rating Scale...

This dataset was compiled as part of the development of the Test of Everyday Cognitive Ability (TECA), a test of ten Timed Instrumental Activities of Daily Living (TIADLS) meant to measure a broad ranger or functioning. TECA’s performance was tested on 177 patients with MS and compared to healthy controls (49 subjects). Participants were recruited from the outpatient practices at Stony Brook Medicine’s...

This data was collected as part of a study of Pediatric-Onset Multiple Sclerosis (POMS), and to define the neuroanatomic underpinnings of deficits identified with cognitive screening batteries in POMS. Participants with POMS (n=15) were recruited through outpatients visits at the Lourie Center for Pediatric MS at Stony Brook University Health Center, and healthy controls (n=21) were recruited through...

The New York City Community Health Survey (CHS) is a telephone survey conducted annually by the DOHMH, Division of Epidemiology, Bureau of Epidemiology Services. CHS provides robust data on the health of New Yorkers, including neighborhood, borough, and citywide estimates on a broad range of chronic diseases and behavioral risk factors.