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Results Found: 108
  • United States Renal Data System

    Alternate Title(s)
    USRDS, US Renal Data System
    Description

    The United States Renal Data System (USRDS) is a national data system that collects, analyzes, and distributes information about end-stage renal disease (ESRD) in the United States. The USRDS is funded directly by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). USRDS staff collaborates with members of Centers for Medicare & Medicaid Services (CMS), the United Network for Organ Sharing (UNOS), and the ESRD networks, sharing datasets and actively working to improve the accuracy of ESRD patient information.

    Subject
    Chronic Disease
    Geographic Coverage
    National
    Access Rights
    Free to All
    Free to all with registration
    Application Required
    Local Expert for NYU
    James Kaufman
  • Action to Control Cardiovascular Risk in Diabetes Trial

    Alternate Title(s)
    ACCORD
    Description

    ACCORD was a large clinical trial examining methods of lowering the rate of cardiovascular disease in adults with type two diabetes. The study was composed of three clinical trials: an intensive lowering of blood sugar levels, intensive lowering of blood pressure, and treatment of multiple blood lipids with a combination of a fibrate and a statin. The study enrolled 10,251 adults beginning in 2001.

    Subject
    Chronic Disease
    Geographic Coverage
    International
    Access Rights
    Application Required
    Local Expert for NYU
    Caroline Blaum
    Lois Katz
  • Cardiovascular Health Study (CHS)

    Alternate Title(s)
    CHS
    Description

    An NHLBI-funded observational study of risk factors for cardiovascular disease in adults 65 years or older. Starting in 1989, and continuing through 1999, participants underwent annual extensive clinical examinations. Measurements included traditional risk factors such as blood pressure and lipids as well as measures of subclinical disease, including echocardiography of the heart, carotid ultrasound, and cranial magnetic-resonance imaging (MRI). At six month intervals between clinic visits, and once clinic visits ended, participants were contacted by phone to ascertain hospitalizations and health status. The main outcomes are coronary heart disease (CHD), angina, heart failure (HF), stroke, transient ischemic attack (TIA), claudication, and mortality. Participants continue to be followed for these events.

    Subject
    Chronic Disease
    Geographic Coverage
    Multiple States
    Access Rights
    Application Required
    Local Expert for NYU
    Caroline Blaum
  • Asian American Partnership in Research and Empowerment
    NYU Dataset

    Alternate Title(s)
    AsPIRE
    Authors
    Chau Trinh-Shevrin
    Nadia S. Islam
    Laura Wyatt
    Description

    Project AsPIRE (Asian American Partnership in Research and Endowment) was a community-based participatory research program designed to develop, test, and evaluate a community health worker model designed to reduce cardiovascular disease and hypertension disparities among Filipino Americans living in New York and New Jersey. The project consisted of a pilot intervention and a 4-month full intervention. There are data available from the intervention, collected at baseline and at 4-months. Survey data is also available from the 8-month mark, although this data was collected for the full intervention only. The pilot intervention included 33 individuals with complete data (a total of 88 were recruited), and the full intervention included a total of 240 individuals with complete data (a total of 305 individuals were randomized into the intervention). Screening surveys with a limited amount of data were also collected between 2008 and 2012 in New York City and Jersey City, NJ and included a total of 1,312 Filipino individuals.

    Subject
    Chronic Disease
    Geographic Coverage
    New York (City)
    Other Regions
    Access Rights
    Application Required
  • Full body EOS 2 dimensional and 3 dimensional measurements for spinal pathologies and correlation with patient reported outcomes: NYU Langone Health EHR Dataset
    NYU Dataset

    Description

    This dataset was compiled as part of a study to assess sagittal spino-pelvic alignment and compensatory mechanisms, using 3D stereographic reconstructions (EOS 3D) and full body x-rays (EOS 2D) in the setting of adult spinal pathologies. Correlations with patient reported outcomes and health-related quality of life were measured and evaluated using Patient-Reported Outcomes Measurement Information System (PROMIS). The data is from April 2013 – March 2017 and includes case procedures, operative time, approach (i.e. posterior, anterior, and/or lateral), estimated blood loss, admission date, and discharge date.

    Subject
    Chronic Disease
    Access Rights
    Fee Required
    Application Required
    NYU Langone Health Only
  • NYU Data for cerebrospinal fluid levels of amyloid beta 1-42 and tau in preclinical Alzheimer’s disease
    NYU Dataset

    Authors
    Mony de Leon
    Elizabeth Pirraglia
    Ricardo Osorio
    Lidia Glodzik
    11 more author(s)...
    Description

    This dataset was derived from three prospective and active (as of 2017) longitudinal studies of aging subjects with normal cognition. Data was collected at NYU and through the Alzheimer's Disease Neuroimaging Initiative (ADNI) and National Alzheimer's Coordinating Center (NACC), although data from ADNI and NACC was anonymized prior to reception at NYU. The NYU dataset includes 331 subjects while the combined cohort dataset includes 651 subjects. Subjects were included if they were between the ages of 45 and 90 and had normal cognition and have a high school education or more. Ambyloid beta 1-42 levels and total tau in cerebrospinal fluid was measured using standard ELISA protocol.

    Subject
    Chronic Disease
    Geographic Coverage
    New York (City)
    Access Rights
    Free to All
  • Relationship between Clinical Parameters and Brain Structure in Sporadic Amyotrophic Lateral Sclerosis Patients According to Onset Type: A Voxel-Based Morphometric Study
    NYU Dataset

    Authors
    Hee-Jin Kim
    Mony de Leon
    Xiuyuan Wang
    Hyun Young Kim
    3 more author(s)...
    Description

    This dataset was generated during a voxel-based morphometry (VBM) study of amyotrophic lateral sclerosis (ALS) and patterns of brain atrophy within ALS subtypes. 62 sporadic ALS patients with limb (n = 42) or bulbar (n = 14) onset with MRI data were included in the study. Onset symptons were collected by medical staff through interviews with patients and family members. The ALS Functional Rating Scale - Revised (ALSFRS-R) was used to evaluate the functional status of ALS patients. MRIs were carried out using a 3.0-T Achieva system.

    Subject
    Chronic Disease
    Access Rights
    Free to all with registration
  • Timed instrumental activities of daily living in multiple sclerosis: The test of everyday cognitive ability (TECA)
    NYU Dataset

    Authors
    Leigh E. Charvet
    Michael T. Shaw
    Kathleen Sherman
    Shannon Haas
    1 more author(s)...
    Description

    This dataset was compiled as part of the development of the Test of Everyday Cognitive Ability (TECA), a test of ten Timed Instrumental Activities of Daily Living (TIADLS) meant to measure a broad ranger or functioning. TECA’s performance was tested on 177 patients with MS and compared to healthy controls (49 subjects).

    Participants were recruited from the outpatient practices at Stony Brook Medicine’s MS Comprehensive Care Center, and healthy controls were recruited from the State University of New York Stony Brook campus and the surrounding community. Eligibility for all participants included: 18 to 70 years of age, English language fluency, no primary neurological (other than MS) or psychiatric disorders, no alcohol or substance abuse, not currently taking CNS stimulate, no major head injury resulting in the loss of consciousness, no uncontrolled health conditions for which ongoing treatment is required, and a scaled reading score between 85 and 115 on the reading recognition subtest of the Wide Range Achievement Test - 3rd Edition (WRAT-3) as a proxy of premorbid general intellectual functioning.

    TECA measured participants on the following ten tasks:

    1. Finding a telephone number
    2. Making change
    3. Reading a label
    4. Finding an item on a shelf
    5. Reading a medicine bottle aloud
    6. Buying grocery items
    7. Finding a telephone number and differentiating between people with the same names
    8. Finding a telephone number of a specific business
    9. Reviewing a shopping list
    10. Recalling the information listed on a medicine bottle

    Each task was scored according to the completion time, and any errors made. At the time of TECA administration, participants also completed additional measures, including the Paced Auditory Serial Addition Test (PASAT), the Delis Kaplan Executive Functioning System (DKEFS), the Brief Visuospatial Memory Test-Revised (BVMT-R), and the Brief International Cognitive Assessment for Multiple Sclerosis (BICAMS).

    Subject
    Chronic Disease
    Access Rights
    Application Required
    Author approval required
  • Brief Computer-Based Information Processing Measures and Pediatric-Onset Multiple Sclerosis
    NYU Dataset

    Authors
    Elizabeth Bartlett
    Michael T. Shaw
    Colleen Schwarz
    Charles Feinberg
    3 more author(s)...
    Description

    This data was collected as part of a study of Pediatric-Onset Multiple Sclerosis (POMS), and to define the neuroanatomic underpinnings of deficits identified with cognitive screening batteries in POMS.

    Participants with POMS (n=15) were recruited through outpatients visits at the Lourie Center for Pediatric MS at Stony Brook University Health Center, and healthy controls (n=21) were recruited through community-based advertisements between February 2015 and December 2015. Subjects were included if they had a POMS diagnoses prior to the age of 18, English language fluency, a score above the 85th percentile on the Wide Range Achievement, 3rd edition (WRAT-3) serving as an estimate of general intellectual functioning. Patients were excluded if they had any other psychiatric or neurological conditions, clinically or radiologically isolated syndromes, a history of prior cognitive impairment, or a history of neurodevelopmental disorders.

    POMS participants underwent neurological examination, including the Expanded Disability Status Scale (EDSS). All participants then received the Cogstate Brief Battery, which consists of three reaction time tasks, and the Brief International Cognitive Assessment for Multiple Sclerosis (BICAMS), which includes the oral test of the Symbol Digit Modalities Test (SDMT), visual learning from the Brief Visual Memory Test-Revised (BVMT-R), and verbal learning from Rey Auditory Verbal Learning Test (RAVLT). Diffusion MRI scans were performed at the Stony Brook Hospital.

    Subject
    Chronic Disease
    Access Rights
    Application Required
    Author approval required
  • New York City Community Health Survey

    Alternate Title(s)
    CHS, NYC CHS
    Description

    The New York City Community Health Survey (CHS) is a telephone survey conducted annually by the DOHMH, Division of Epidemiology, Bureau of Epidemiology Services. CHS provides robust data on the health of New Yorkers, including neighborhood, borough, and citywide estimates on a broad range of chronic diseases and behavioral risk factors.

    Subject
    Chronic Disease
    Risk Factors
    Geographic Coverage
    New York (City)
    Access Rights
    Free to All
    Local Expert for NYU
    James Macinko
    Stella Yi